Ask any person what they fear most about illness and they will likely tell you they fear pain. No one wants to suffer. Although suffering is a reality for many who are ill, suffering and illness shouldn’t go together. Fortunately, there are those working to change this situation for the better.
How do we relieve pain for those who are ill? What can be done to make sure people live a good quality of life for however long they live? Those were some of the questions we explored last night on Health Watch as we considered the topic, “Why Suffering and Illness Shouldn’t Mix: Pain Relief for the Seriously Ill.” Joining us by phone was Dr. Diane Meier, director of the Mount Sinai School of Medicine palliative care institute and center in New York City. She holds the distinction of being a 2008 MacArthur Foundation “genius grant” recipient and recently edited a book, Palliative Care: Transforming the Care of Serious Illness, which comprehensively considers pain and pain management. Dr. Meier was an ideal guest to talk about pain relief.
Dr. Meier shared that how we deal with pain, whether as a patient or a provider, is related to culture. We discussed how cultural notions like “gritting our teeth and bearing it,” and “no pain, no gain” often create situations in which pain is not treated like a medical emergency (which it is), but instead as a statement of character. As a palliative care specialist and geriatric physician, Dr. Meier works to change the way healthcare deals with pain and suffering. She is succeeding one patient and family at a time.
During the program Dr. Meier explained what palliative care is. Palliative care is care provided to relieve pain, stress and other symptoms of serious illness. Palliative care is not the same as hospice, which provides care at the end of a person’s life. Although hospice is part of palliative care, palliative care is not just for those who are terminally ill or dying. Palliative care is for anyone experiencing pain or suffering related to illness. The goal of palliative care is to improve people’s quality of life for however long they live. Achieving this first requires walking in another’s shoes.
Dr. Meier talked about how good palliative care first starts with providers listening to patients about their pain. Good listening, which includes rating pain intensity and setting goals to reduce pain, leads to better identification and address of specific pain symptoms. But, palliative care is more than just good listening. It is also about providers’ foreknowledge of the side effects associated with pain-relief medications (things like constipation), as well as understanding that pain is more than physical. It is emotional and spiritual, as well. Treating chronic pain and suffering, therefore, requires a team approach, one that includes healthcare providers, social workers, chaplains, family members and others. Each has an important role to play in providing pain relief. Dr. Meier’s genuineness and concern for those in pain was apparent even over the phone. It was a Health Watch you would not have wanted to miss!
Before we closed the show, Dr. Meier talked about the unsung heroes/sheroes of the palliative care movement. These people are caregivers. Often overlooked, caregivers walk daily the pain management road with their loved ones. Busily caring for others, caregivers often neglect their own health, too often leading to their premature deaths and disability. Dr. Meier spoke candidly about how we need to help share the load with those who care for others. She also strongly encouraged caregivers to advocate for their loved one’s pain management, even to the point of sometimes irritating healthcare providers to do it. When it comes to effective pain management, assertiveness pays in better quality outcomes.
If you want to find out more about Dr. Meier and her palliative care approach, then check out these links:
http://www.npcrc.org/about/about_show.htm?doc_id=437101
http://www.mountsinai.org/profiles/diane-e-meier
People who are hurting shouldn’t have to. Relieving pain associated with illness requires time, empathy and compassion. Although it may not be easy, giving someone quality time to spend living is definitely worth it. Health Watch will continue shining its light on paths that lead to better health and pain-free living. Until next time remember, “When we know better, we do better. Then pass it on!”
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