“Being Sick and Tired of Being Sick and Tired”

The noted Civil Rights leader Fannie Lou Hamer coined the phrase, “Being sick and tired of being sick and tired.” She used it to describe what it felt like to be black, poor, left out and disenfranchised under Jim Crow. Sickening and tiring. Not just a chronic situation people were living with, Hamer also meant it as a rally cry. When you are “sick and tired of being sick and tired” you do something about it. Being “sick and tired” can be the starting point for getting well. People with chronic fatigue syndrome know all about this.

Health Watch wanted to find out more about chronic fatigue syndrome and what it means to be “sick and tired of being sick and tired.” We also wanted to know what is being done to help people with CFS and what people with CFS are doing to educate others about the condition. To answer some of our questions about CFS we had Dr. Charles Stratton, associate professor, Vanderbilt University School of Medicine on last night’s Health Watch.

Dr. Stratton told us that chronic fatigue syndrome (CFS) is not the same as being tired from being overworked or stressed out. Nor are CFS and its debilitating effects something just in people’s heads. Instead CFS is a medical condition that causes people to be significantly fatigued. Common symptoms associated with CFS include: difficulties with memory and concentration; joint pain and inflammation; tender lymph nodes; on-going muscle pain; feeling tired and exhausted even after resting; and problems with sleep. Because the symptoms of CFS resemble those associated with other medical conditions, it is not always easy for healthcare providers to determine if a person has CFS.

Yet, as Dr. Stratton shared more and more research is linking CFS to specific pathogens, which invade the body and cause wasting associated with CFS. If the associated pathogen can be identified and treated, it is possible for those with CFS to return to their normal, active lives. Dr. Stratton talked about one survivor who as a child with CFS once treated went from wasting away to becoming an active and healthy adult.

Dr. Stratton also shared that CFS is less common in children and more often seen in adults between 40-50yrs. Although it appears to happen more in women, Dr. Stratton pointed out this may only be because CFS can be easily misdiagnosed and that there are many people who may have symptoms, yet do not know they have CFS. That is why public awareness about CFS is so important.

To raise our awareness about CFS, the Chronic Fatigue and Immune Dysfunction Syndrome (CFIDS) Association of America in conjunction with the Centers for Disease Control and Prevention (CDC) is sponsoring a national photo exhibit called, The Faces of Chronic Fatigue Syndrome. The photo exhibit features the stories of people living with CFS, along with information, local experts and actual people touched by CFS. The exhibit is touring the Nashville area at Cool Spring Galleria, 1800 Galleria Boulevard in Franklin, TN from September 21-27, 2009. To find out more about the exhibit and The CFIDS Association of America, please check out these links:

http://www.cfids.org/sparkcfs/default.asp

http://www.cfids.org/

“Being sick and tired of being sick and tired” is something those with CFS understand all too well. Yet, those with CFS are not taking it lying down. Instead they are rallying and educating others about it. By getting educated about CFS we too can join the cause. Until next time remember, “When we know better, we should do better. So pass it on.”